25 things about autism mothering, from the archives.
(updated to reflect my current reality)
1) My husband and I planned on having our first child after two years of marriage.Matthew beat us by 2 months.
2) I took Matthew on a job interview when he was eight weeks old because I couldn’t bear to leave him with a babysitter.
3) The first person that told me that Matthew, then three, was developmentally delayed was a speech therapist. She was also the first person who didn’t mention how adorable he was.
4) My husband and I coached Matthew before his next evaluation with a child psychologist. We read him Richard Scary’s Best Word Book Ever.
6) Matthew lined up toys and laughed too hard at sprinklers in the garden. None of the books mentioned this behavior in the milestone department. What was going on?
7) I was angry with Matthew for being stuck on the sprinklers, and the drains, and the lights, and I felt guilty that I was angry.
8) When Matthew’s baby brother Andy charmed family and friends with his personality and smarts, my love for Matthew deepened.
9) Andy is now 26. My most cherished childhood memories with him are the walks we took while Matthew was with speech therapist/psychologists/occupational therapists etc.
10) Matthew’s youngest brother, John, was one week old when we tried our first miracle cure, auditory training. He is now 21 and helps Matthew film “rock-u-mentaries”. More about that another time. He is even more patient with Matthew than I am.
11) Matthew is WAY more capable than I ever dreamed he would be. WAY. He’s hardest working person I know.
12) It used to ruin my day when people stared at Matthew, but it doesn’t anymore. I get that my son’s behavior can be stare worthy, and that people are curious.
13) It used to ruin my day when Matthew told me he is lonely….
14) …but I can’t remember that last time he told me that, because he has friends, and a purpose in life.
15) The year I accepted that Matthew’s autism was lifelong was also the year I found a great therapist. Best thing I ever did.
16) People that used to be wary of Matthew now tell me that he has developed into a delightful young man.
17) The best thing that Matthew inherited from me is my sense of humor.
18) There is nothing more contagious than one of Matthew’s smiles.
19) There are more kind people in the world than there are jerks.
20) I cried at every IEP except for the last one.
21) I never blamed vaccines.
22) I’ve met some of the best people because of Matthew.
23) In case you wondered, my husband I have stayed together.
24) I am luckier that most.
25) The lump in my throat will never go away.
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